We have rented a car and Ubered it. The drive is about 25 minutes. We arrive Sunday or earlier because you will need to check into the hospital at 8am Monday morning. This last trip we stayed Sunday night at Parkway Hotel. Each room has a refrigerator which is a must if you are traveling with Strensiq. The kids loved the warm chocolate chip cookies in the evening. As far as packing, overall comfortable clothes depending on the weather. Bring a pair of slippers or flip flops for everyone to wear about the hospital.
Bring your own toiletries. They have a small box, but pretty picked over last time we were there. Bring some snacks for the parents and a reusable water bottle for all. If you have room bring a pillow and blanket. Maybe even a towel…the hospital towels are barely bigger than a hand towel, thin, and rough. It was built in The Research Center is located on the 3rd floor.
Each family gets one room to share with your own bathroom. They have pack and plays, high chairs, baby bath tubs, and I am sure anything else you might need.
As stated above, if I was driving I would bring my own pillows and blankets for sure! The rooms have a TV with cable and Playstation. You can check out movies from the Recreation Department. They have tons for all ages! The bathrooms have a shower, but bring your own toiletries. You can purchase food from the downstairs cafe or bring in your own. For breakfast, we walked to Vincent Van Doughnut. They are known for their creative donuts, but their coffee and quiche were fantastic too.
It is just a short mile away and a safe walk. Trust me, it feels good to get some fresh air and sunshine. They delivered to the hospital. Their salads and calzones are delicious and big enough to share or have left-overs. They have amazing staff and volunteers who entertain the kids. They will post a schedule and this is where the kids hang out every minute they are not sleeping or doing tests. They have craft time, game time, Bingo, Pet Therapy, free play, and much more.
Monday : Check-in at 8am. This was fast and we were up in the research center starting the kids on their research diet with breakfast. They will stay on the research diet the entire stay. This will try to replicate their calcium intake at home. Data were exclusively from inpatient studies. The childhood form of HPP was further designated "mild" or "severe". Here, we focused on demographic, clinical, and dual-energy X-ray absorptiometry parameters compared to data from healthy American children.
None was a survivor of perinatal HPP. Thirteen mutations were unique. Most patients represented autosomal dominant inheritance of HPP. Find out what's happening in Ladue-Frontenac with free, real-time updates from Patch. Let's go! Thank Reply Share. The rules of replying: Be respectful. This is a space for friendly local discussions. No racist, discriminatory, vulgar or threatening language will be tolerated. Be transparent. Use your real name, and back up your claims. Keep it local and relevant.
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